tag:blogger.com,1999:blog-7232228941129431680.comments2023-06-13T04:26:17.537-07:00Antiphospholipid Antibody Syndrome (APS) - SAY NO to Home INR and Finger Stick Machines!!Finger Stick Machine Educationhttp://www.blogger.com/profile/16601438787866118664noreply@blogger.comBlogger45125tag:blogger.com,1999:blog-7232228941129431680.post-56616351643072427772010-02-05T08:59:42.230-08:002010-02-05T08:59:42.230-08:00Ok, after reading this, it makes me question if th...Ok, after reading this, it makes me question if these machines are accurate for anyone? Not one of the machines were close to the vein draw?<br /><br />I have read the whole thread via the URL you posted, since it was public. I also noticed this post from another poster<br /><br />"I did speak to a hematologist yesterday, and he told me they won't use digital INR meters in their clinics as they are too unreliable."<br /><br />The "real patient" experience is speaking much different than the studies are. Then again, the studies probably were focused to get the machines on the market, which explains the "invitation only" study.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-24115220961144718572010-02-04T22:37:03.090-08:002010-02-04T22:37:03.090-08:00So, if they know these machines are faulty, why do...So, if they know these machines are faulty, why do they still use them? Do they have a death wish?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-62386710345371172362010-02-04T22:35:20.029-08:002010-02-04T22:35:20.029-08:00Amazing, all of this evidence and people still thi...Amazing, all of this evidence and people still think these machines are great. I don't understand it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-741398387963675822010-02-04T22:33:34.528-08:002010-02-04T22:33:34.528-08:00My God, are these machines safe for anyone really?...My God, are these machines safe for anyone really?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-32629230547717887262010-02-04T19:26:58.938-08:002010-02-04T19:26:58.938-08:00Thanks! I like to think she would be.
I am glad ...Thanks! I like to think she would be. <br /><br />I am glad people have broken their silence too.Finger Stick Machine Educationhttps://www.blogger.com/profile/16601438787866118664noreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-58105189486693140202010-02-04T19:25:38.289-08:002010-02-04T19:25:38.289-08:00I actually found that set of links on a forum. I s...I actually found that set of links on a forum. I should have posted the source. <br /><br />Glad though that you've seen the light. The machines are not worth the risk.Finger Stick Machine Educationhttps://www.blogger.com/profile/16601438787866118664noreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-22220504374849773842010-02-04T19:23:21.614-08:002010-02-04T19:23:21.614-08:00I agree.
I wish I had looked at/for the fine prin...I agree.<br /><br />I wish I had looked at/for the fine print before we got that damned machine for my mom. She may be here with me now.Finger Stick Machine Educationhttps://www.blogger.com/profile/16601438787866118664noreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-71384131811422843522010-02-04T09:06:45.764-08:002010-02-04T09:06:45.764-08:00When I searched about finger stick machines about ...When I searched about finger stick machines about a year ago, that APSFA links were the first ones to come up. I am glad they have the "fine print" out there because the companies sure don't or if they do, it is buried on their sites.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-81939221254783482282010-02-04T08:57:51.705-08:002010-02-04T08:57:51.705-08:00People are really starting to open up and share th...People are really starting to open up and share their experiences with these machines. <br /><br />No more silence. Your mom would be proud!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-85827503647570505362010-02-04T08:55:30.152-08:002010-02-04T08:55:30.152-08:00FDA reports from MAUDE. I have never seen those b...FDA reports from MAUDE. I have never seen those before. Thanks for finding those. I am soo thankful for this blog. It probably saved my life.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-7843825886120810482010-02-04T08:52:28.792-08:002010-02-04T08:52:28.792-08:00I am very sorry for the loss of your mother. It m...I am very sorry for the loss of your mother. It makes complete sense why you are speaking up about these machines.<br /><br />I am sure it is maddening to see there are others that this could happen to in a heart beat and they are dismissing the seriousness.<br /><br />I guess they have to wait until the shoe is on their foot.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-88985476984973070252010-02-03T20:23:20.919-08:002010-02-03T20:23:20.919-08:00Hilarious, isn't it?
Maybe it's dirty...I...Hilarious, isn't it?<br /><br />Maybe it's dirty...I think I fell out of my chair on that one.Finger Stick Machine Educationhttps://www.blogger.com/profile/16601438787866118664noreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-60408236385454856822010-02-03T20:21:02.708-08:002010-02-03T20:21:02.708-08:00Yes, I know "what I'm on about".
N...Yes, I know "what I'm on about". <br /><br />No, I personally don't take Warfarin...but my mother did. Maybe you need to read her story that I posted tonight. <br /><br />Anyone with a shred of SENSE would actually take the time to read the literature that came with the machine and listen to the warnings. <br /><br />If you have APS the machine is OBVIOUSLY faulty. That IS my point. Thanks for validating it.Finger Stick Machine Educationhttps://www.blogger.com/profile/16601438787866118664noreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-84315425212829590812010-02-03T17:57:50.516-08:002010-02-03T17:57:50.516-08:00I removed one name from the blog, of there is anot...I removed one name from the blog, of there is another one that needs to be removed, please leave another comment and I will happily do so. <br /><br />I also removed another comment regarding a specific group, of which I am not affiliated and will be blogging about that in a few minutes.Finger Stick Machine Educationhttps://www.blogger.com/profile/16601438787866118664noreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-4004105623745892272010-02-03T04:07:42.598-08:002010-02-03T04:07:42.598-08:00do you even know what you are on about???? You obv...do you even know what you are on about???? You obviously do not need to have constant venous tests or take warfarin......anyone with a shred of sense who understands there own body would know if their INR was that much out from the therapeutic range and if the monitor said one thing and your body was telling you another you would....have it rechecked......if a monitor is that much out then it is obviously faulty.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-40925694399639453192010-02-02T06:37:27.309-08:002010-02-02T06:37:27.309-08:00I one of those people on the forum you are quoting...I one of those people on the forum you are quoting/pulling down, and i would appreciate it if you would kindly remove my name from the script.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-12250598313782151432010-01-24T14:35:03.316-08:002010-01-24T14:35:03.316-08:00What! They are basically selling the machines?! ...What! They are basically selling the machines?! I have read another page questioning if there were kick backs invovled. This kind of makes it look like there is. <br /><br />Damn patient safety and ethics...lets go for the money.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-86107758194586496632010-01-24T14:33:01.651-08:002010-01-24T14:33:01.651-08:00OMG how can they not say it isn't Roche or the...OMG how can they not say it isn't Roche or the machines. PLEASE!! Read the information that comes from the manufactures, not some stupid testimonial from someone pushing the machine down your throat. <br /><br />The manufactures clearly state they are not accurate in APS patients.<br /><br />I see this batch of people needing a major clotting event or bleeding event (or a death) to get it the picture these machines aren't safe for them.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-77253789869966707842010-01-24T14:27:57.085-08:002010-01-24T14:27:57.085-08:00You have to be kidding me?! The problem is the ma...You have to be kidding me?! The problem is the machine and the regents. The problem is they never should have sold the machine to you. <br /><br />I bet the company tried to sell them their wipes because of course that will solve all the problems.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-45892325213422350392010-01-24T14:25:55.622-08:002010-01-24T14:25:55.622-08:00So, is it me or did this forum just dismiss his co...So, is it me or did this forum just dismiss his concern. The read he had was VERY off. This poster was lucky to be alive to tell about their experience! <br /><br />The next poster says it is their machine is only 0.1-0.5 off? 0.5 off is a lot in the grand scheme of things. And how often are those comparisons drawn? Never probably. Time of the day? <br /><br />Such denial!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-59082147526684814012010-01-24T14:21:56.161-08:002010-01-24T14:21:56.161-08:00My life is worth more than a 10% to 30% +/- accept...My life is worth more than a 10% to 30% +/- acceptable deviation. How can people be so stupid to trust a machine that the manufactures make you sign a waiver for use because you have APS?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-9952836600316806682010-01-24T14:17:52.845-08:002010-01-24T14:17:52.845-08:00I would love to know how many people would have ad...I would love to know how many people would have adjusted their dose down or kept their dose the same if their machine read that INR? 3.7 points off is A LOT!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-35436758159254625312010-01-16T10:14:30.947-08:002010-01-16T10:14:30.947-08:00This is unfortunately from two different groups. B...This is unfortunately from two different groups. But this community online is not very large so many members are on different lists. <br /><br />I think the facts are clear, too. But what do I know? It's only in black and white! <br /><br />Thanks for the comment!Finger Stick Machine Educationhttps://www.blogger.com/profile/16601438787866118664noreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-83676604180608987862010-01-16T10:07:50.471-08:002010-01-16T10:07:50.471-08:00These little studies prove accuracies because they...These little studies prove accuracies because they know anything more than 2 months will show problems and big companies and investors will lose money. They don't care about APS patients.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7232228941129431680.post-41670789382551037732010-01-16T10:05:08.447-08:002010-01-16T10:05:08.447-08:00Looks like that list is the blind leading the blin...Looks like that list is the blind leading the blind. Your facts are pretty clear. Even cases that were sent to the FDA to information provided by the manufacture themselves.Anonymousnoreply@blogger.com